Do you live in or near Tallahassee, FL? If so, please join us on July 28th for World Hepatitis Day where we will act out "see no evil, hear no evil, speak no evil" for a group photograph bringing awareness to the fact that hepatitis is being ignored all over the world. It will be at the Senior Center, 1400 N. Monroe St, 2nd floor Auditorium. Check in from 9:45am to 10:45am and photo at 11am. You can view the flyer at:
http://peachstatepam.healthblogs.org/2012/07/16/world-hepatitis-day-in-tallahassee-fl/ For some reason, I no longer have an *insert picture* area here. Hope to see you there!
Tuesday, July 17, 2012
Thursday, July 5, 2012
Still think Hepatitis isn’t important enough for everyone to learn about?
One-third of world has hepatitis: WHO report
By David W Freeman
The World Health Organization hopes posters like these will help raise awareness of hepatitis
(CBS) Hepatitis takes a huge toll on health. More than two billion people - roughly one-third of the entire world population - is infected with one of the viruses that causes the potentially deadly liver disease, according to a new estimate from the World Health Organization.
Tragically, most people infected with one of the viruses that cause hepatitis don't know they're infected. That increases the risk that they will unwittingly transmit the virus to other people.
And if regular folks don't understand much about the risks posed by hepatitis, neither do politicians.
"This is a chronic disease across the whole world, but unfortunately there is very little awareness, even among health policy-makers, of its extent," Steven Wiersma, a hepatitis specialist with the organization, said at a press conference, Reuters reported.
What does everyone need to know about hepatitis?
There are five main viruses capable of causing hepatitis, which doctors designate using the letters A, B, C, D, and E. The viruses causes different symptoms and spread in different ways, including via contaminated water and food as well as blood and semen. Hepatitis B and C are particularly worrisome, as they can lead to chronic disease and are the most common causes of liver cirrhosis and liver cancer. The CDC has more on hepatitis. (Credit: World Health Organization)
By David W Freeman
The World Health Organization hopes posters like these will help raise awareness of hepatitis
(CBS) Hepatitis takes a huge toll on health. More than two billion people - roughly one-third of the entire world population - is infected with one of the viruses that causes the potentially deadly liver disease, according to a new estimate from the World Health Organization.
Tragically, most people infected with one of the viruses that cause hepatitis don't know they're infected. That increases the risk that they will unwittingly transmit the virus to other people.
And if regular folks don't understand much about the risks posed by hepatitis, neither do politicians.
"This is a chronic disease across the whole world, but unfortunately there is very little awareness, even among health policy-makers, of its extent," Steven Wiersma, a hepatitis specialist with the organization, said at a press conference, Reuters reported.
What does everyone need to know about hepatitis?
There are five main viruses capable of causing hepatitis, which doctors designate using the letters A, B, C, D, and E. The viruses causes different symptoms and spread in different ways, including via contaminated water and food as well as blood and semen. Hepatitis B and C are particularly worrisome, as they can lead to chronic disease and are the most common causes of liver cirrhosis and liver cancer. The CDC has more on hepatitis. (Credit: World Health Organization)
Saturday, March 24, 2012
Subject: Confidential Online Survey for those with Hep C/Genotype 1
Subject: Confidential Online Survey for those with Hep C/Genotype 1
A $25 donation made to HEALS for taking the survey
FACP /HEALS of the South Find a Cure Panel specializes in patient research for serious diseases including Hep C.
And they have a current anonymous online survey for those who Hep C.
To qualify you must:
1) Have HEP C รข€“ have a current diagnosis (ie. NOT cured the virus)
2) Live in the US
3) Be Genotype 1
4) You can be on meds; not on meds currently or never on meds. If you are in process of curing the virus, you will still qualify as long as you have not officially cured it.
If you complete the survey, FACP will donate $25 to HEALS.
Please click on this link to access the survey. http://www.sampleczar.com/survey/SC_RD.aspx?supplier_id=5033
You will be asked to register for FACP which takes 1 minute then swung into the main survey. The data in the FACP profile is NOT connected to the main survey. Your participation in this survey and all subsequent surveys is completely anonymous. If you have already registered for FACP, you will have already received an email invitation from them.
If you have any questions about participating, please contact FACP directly at: info@findacurepanel.com
~~~~~~~~~~~~~~~~~~~~~~~~~~
Hi Everyone. I just completed the survey and it did take about 1/2 hour but H.E.A.L.S would very much appreciate it if those of you that are geno 1's would PLEASE take the time to do the survey and Help H.E.A.L.S Help Others with the $25 donation they will give to H.E.A.L.S.
Thank you for your time and consideration!
Also please feel free to pass forward to anyone you know that would qualify and THANK YOU!
A $25 donation made to HEALS for taking the survey
FACP /HEALS of the South Find a Cure Panel specializes in patient research for serious diseases including Hep C.
And they have a current anonymous online survey for those who Hep C.
To qualify you must:
1) Have HEP C รข€“ have a current diagnosis (ie. NOT cured the virus)
2) Live in the US
3) Be Genotype 1
4) You can be on meds; not on meds currently or never on meds. If you are in process of curing the virus, you will still qualify as long as you have not officially cured it.
If you complete the survey, FACP will donate $25 to HEALS.
Please click on this link to access the survey. http://www.sampleczar.com/survey/SC_RD.aspx?supplier_id=5033
You will be asked to register for FACP which takes 1 minute then swung into the main survey. The data in the FACP profile is NOT connected to the main survey. Your participation in this survey and all subsequent surveys is completely anonymous. If you have already registered for FACP, you will have already received an email invitation from them.
If you have any questions about participating, please contact FACP directly at: info@findacurepanel.com
~~~~~~~~~~~~~~~~~~~~~~~~~~
Hi Everyone. I just completed the survey and it did take about 1/2 hour but H.E.A.L.S would very much appreciate it if those of you that are geno 1's would PLEASE take the time to do the survey and Help H.E.A.L.S Help Others with the $25 donation they will give to H.E.A.L.S.
Thank you for your time and consideration!
Also please feel free to pass forward to anyone you know that would qualify and THANK YOU!
Wednesday, November 2, 2011
NVHR/NASTAD meeting in DC October 2011~
This is where I was last week. A wonderful HCV conference where Natalie Cole was the guest speaker. Yes that is me doing the intro :-)
I misspoke and should have said my hemoglobin went from almost 17 to 6, not 7 to 6 but oh well! LOL
Check out the link and hear what Natalie has to say about her journey and please feel free to pass forward. http://youtu.be/Ql-Fb3Vc-co You might have to copy and paste into your browser
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Copy and paste the link into your browser to see the picture[s]:
http://2011dchepatitismeeting.shutterfly.com/pictures/252
I misspoke and should have said my hemoglobin went from almost 17 to 6, not 7 to 6 but oh well! LOL
Check out the link and hear what Natalie has to say about her journey and please feel free to pass forward. http://youtu.be/Ql-Fb3Vc-co You might have to copy and paste into your browser
~~~~~~~~~~~~~~~~~~~~~~~~~~~
Copy and paste the link into your browser to see the picture[s]:
http://2011dchepatitismeeting.shutterfly.com/pictures/252
Sunday, October 30, 2011
GET TESTED for Hepatitis C! Important for Everyone from Transplant Recipients to Licensed Practical Nurses!
GET TESTED for Hepatitis C!
About me: (from www.myspace.com/figmento )
I was diagnosed with Hepatitis C in June 1997 in Glenwood Springs, Colorado and since that time I have turned my life over to educating and advocating wherever I can for Hepatitis C. I do have cirrhosis.
You should be tested for Hepatitis C if you:
*Received blood, blood products, or an organ transplant prior to 1992
*Ever shared drug paraphernalia
*Ever been stuck by a used blood needle
*Had a tattoo or body piercing
*Been on kidney dialysis
*Had sexual activity that involved contact with blood
*Had a vaccination with a pneumatic jet gun injector (Military)
*Shared personal care items with other people (razors, toothbrushes, nail clippers, etc.)
*Work as a first responder (EMT, fireman, policeman, etc.) or in the health care field (Doctor,PA, RN, LPN, etc)
Hepatitis C patients outnumber HIV patients FIVE TO ONE! 1 in 12 in the world have some form of hepatitis! Visit http://www.aminumber12.org/ for more information.
While living in Woodstock, GA several years ago, I became actively involved in a nonprofit called H.E.A.L.S of North Georgia (Hepatitis Education Awareness and Liver Support) and when I moved to Florida we changed the name to H.E.A.L.S of the South. We have websites at http://www.healsofthesouth.org/ and http://www.healsofthesouth.com/
Stop by and visit!
Also you can join http://groups.yahoo.com/group/HepCingles2 and ASK QUESTIONS and receive support!
Mahatma Gandhi put it well: "Be the change you want to see in the world." It always begins with one person.
Tell 12 of your friends to get Tested for Hep C and vaccinated for Hep A and Hep B and tell them to tell 12 friends. Let's educate the WORLD!
About me: (from www.myspace.com/figmento )
I was diagnosed with Hepatitis C in June 1997 in Glenwood Springs, Colorado and since that time I have turned my life over to educating and advocating wherever I can for Hepatitis C. I do have cirrhosis.
You should be tested for Hepatitis C if you:
*Received blood, blood products, or an organ transplant prior to 1992
*Ever shared drug paraphernalia
*Ever been stuck by a used blood needle
*Had a tattoo or body piercing
*Been on kidney dialysis
*Had sexual activity that involved contact with blood
*Had a vaccination with a pneumatic jet gun injector (Military)
*Shared personal care items with other people (razors, toothbrushes, nail clippers, etc.)
*Work as a first responder (EMT, fireman, policeman, etc.) or in the health care field (Doctor,PA, RN, LPN, etc)
Hepatitis C patients outnumber HIV patients FIVE TO ONE! 1 in 12 in the world have some form of hepatitis! Visit http://www.aminumber12.org/ for more information.
While living in Woodstock, GA several years ago, I became actively involved in a nonprofit called H.E.A.L.S of North Georgia (Hepatitis Education Awareness and Liver Support) and when I moved to Florida we changed the name to H.E.A.L.S of the South. We have websites at http://www.healsofthesouth.org/ and http://www.healsofthesouth.com/
Stop by and visit!
Also you can join http://groups.yahoo.com/group/HepCingles2 and ASK QUESTIONS and receive support!
Mahatma Gandhi put it well: "Be the change you want to see in the world." It always begins with one person.
Tell 12 of your friends to get Tested for Hep C and vaccinated for Hep A and Hep B and tell them to tell 12 friends. Let's educate the WORLD!
Tuesday, August 2, 2011
World Hepatitis Day July 28, 2011
White House: World Hepatitis Day Briefing, July 28,2011
Click to watch............
http://www.youtube.com/watch?v=57GqP85CURE&feature=youtu.be
http://www.youtube.com/watch?v=R1gz5gxKwhM&feature=youtu.be
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
President Obama proclaims July 28, 2011, as World Hepatitis Day
http://nvhr.org/content/president-obama-proclaims-july-28-2011-world-hepatitis-day
Then click on the PDF
2011_hepatitis_prc_rel.pdf
Click to watch............
http://www.youtube.com/watch?v=57GqP85CURE&feature=youtu.be
http://www.youtube.com/watch?v=R1gz5gxKwhM&feature=youtu.be
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
President Obama proclaims July 28, 2011, as World Hepatitis Day
http://nvhr.org/content/president-obama-proclaims-july-28-2011-world-hepatitis-day
Then click on the PDF
2011_hepatitis_prc_rel.pdf
Wednesday, June 8, 2011
Killing Us Softly: What Americans Don't Know & Why It Will Kill Them
Killing Us Softly: What Americans Don't Know & Why It Will Kill Them
For too long, viral hepatitis, an epidemic that doesn't necessarily make headlines, has steadily and silently affected the lives of millions of Americans. In fact, as many as 5.3 million Americans have hepatitis B or hepatitis C, contributing to a global burden that now engulfs more than half a billion people. These infections fuel a cascade of suffering, including cirrhosis, liver cancer and liver failure. In fact, viral hepatitis is the leading cause of liver transplantation in the U.S. In short, vulnerable communities are being devastated across our nation and, indeed, around the world. Last month, our government made a commitment to advance and integrate national efforts to break the silence.
Why is taking action so necessary? First, because those with the disease can be symptom-free for decades, and few actually know their status or understand how highly infectious viral hepatitis is. For example, hepatitis C is 10 times more infectious and hepatitis B is 100 times more infectious than HIV/AIDS. And nearly two-thirds of those living with hepatitis don't even know they're infected. This tragic lack of awareness leaves infected persons more vulnerable to complications and also more likely to unwittingly spread the infection to others. Second, without action, hepatitis B and C will burden our country with at least $20 billion in health care expenses over the next 10 years. Finally, we know that too many opportunities for prevention, testing and treatment -- including vaccination against hepatitis B -- have remained untapped or underutilized.
Fortunately, the federal government has initiated new efforts to tackle this treatable and highly preventable public health challenge. The U.S. Department of Health and Human Services (HHS) recently released Combating the Silent Epidemic of Viral Hepatitis: Action Plan for the Prevention, Care and Treatment of Viral Hepatitis, a comprehensive strategy to combat the disease. This action plan contains a series of interventions that are both cost-effective and feasible. The plan includes some important building blocks already in place, including vaccination against hepatitis B. Most notably, the Affordable Care Act (ACA) improves patient access to viral hepatitis services through education, testing, vaccination and referral. Moreover, the ACA encourages state-based Medicaid programs to cover clinical preventive services such as immunization. Other strategies aim to raise public awareness about viral hepatitis and to create more opportunities to train health professionals to diagnose, treat and ultimately prevent more people from getting this disease.
We hope that these and other commitments will catalyze action for further progress. On the global front, the World Health Organization has designated July 28 as the first annual World Hepatitis Day. Such attention is long overdue for a condition that affects one in 12 persons worldwide. These new beginnings can shine a bright light on a disease that has lingered for too long in the shadows.
As a nation and as part of a global society, it is time to break the silence. Too many are suffering and the consequences affect us all. Together, we must finally sound the alarm that can serve as a call to action to end this silent epidemic.
Rep Mike Honda is Chair Emeritus of the Congressional Asian Pacific American Caucus. Follow Rep Honda on Facebook and Twitter. Dr. Howard K. Koh is the Assistant Secretary for Health for the U.S. Department of Health and Human Services.
Follow Rep. Mike Honda on Twitter: www.twitter.com/repmikehonda
http://www.huffingtonpost.com/rep-mike-honda/world-hepatitis-day_b_872471.html
For too long, viral hepatitis, an epidemic that doesn't necessarily make headlines, has steadily and silently affected the lives of millions of Americans. In fact, as many as 5.3 million Americans have hepatitis B or hepatitis C, contributing to a global burden that now engulfs more than half a billion people. These infections fuel a cascade of suffering, including cirrhosis, liver cancer and liver failure. In fact, viral hepatitis is the leading cause of liver transplantation in the U.S. In short, vulnerable communities are being devastated across our nation and, indeed, around the world. Last month, our government made a commitment to advance and integrate national efforts to break the silence.
Why is taking action so necessary? First, because those with the disease can be symptom-free for decades, and few actually know their status or understand how highly infectious viral hepatitis is. For example, hepatitis C is 10 times more infectious and hepatitis B is 100 times more infectious than HIV/AIDS. And nearly two-thirds of those living with hepatitis don't even know they're infected. This tragic lack of awareness leaves infected persons more vulnerable to complications and also more likely to unwittingly spread the infection to others. Second, without action, hepatitis B and C will burden our country with at least $20 billion in health care expenses over the next 10 years. Finally, we know that too many opportunities for prevention, testing and treatment -- including vaccination against hepatitis B -- have remained untapped or underutilized.
Fortunately, the federal government has initiated new efforts to tackle this treatable and highly preventable public health challenge. The U.S. Department of Health and Human Services (HHS) recently released Combating the Silent Epidemic of Viral Hepatitis: Action Plan for the Prevention, Care and Treatment of Viral Hepatitis, a comprehensive strategy to combat the disease. This action plan contains a series of interventions that are both cost-effective and feasible. The plan includes some important building blocks already in place, including vaccination against hepatitis B. Most notably, the Affordable Care Act (ACA) improves patient access to viral hepatitis services through education, testing, vaccination and referral. Moreover, the ACA encourages state-based Medicaid programs to cover clinical preventive services such as immunization. Other strategies aim to raise public awareness about viral hepatitis and to create more opportunities to train health professionals to diagnose, treat and ultimately prevent more people from getting this disease.
We hope that these and other commitments will catalyze action for further progress. On the global front, the World Health Organization has designated July 28 as the first annual World Hepatitis Day. Such attention is long overdue for a condition that affects one in 12 persons worldwide. These new beginnings can shine a bright light on a disease that has lingered for too long in the shadows.
As a nation and as part of a global society, it is time to break the silence. Too many are suffering and the consequences affect us all. Together, we must finally sound the alarm that can serve as a call to action to end this silent epidemic.
Rep Mike Honda is Chair Emeritus of the Congressional Asian Pacific American Caucus. Follow Rep Honda on Facebook and Twitter. Dr. Howard K. Koh is the Assistant Secretary for Health for the U.S. Department of Health and Human Services.
Follow Rep. Mike Honda on Twitter: www.twitter.com/repmikehonda
http://www.huffingtonpost.com/rep-mike-honda/world-hepatitis-day_b_872471.html
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